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Professor Mary Mc Carron

Professor of Ageing & Intellectual Disab (School of Nursing & Midwifery)
NO.2 CLARE STREET


Mary McCarron, PhD RNID, RGN, BNS. F.T.C.D is Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin. Since joining Trinity College in 2002 Professor McCarron has held many senior leadership roles including, Director of Research and Head of the School of Nursing and Midwifery which is now one of the largest Schools in the University and ranked 31st in the World 2016. With excess of 1400 students and over 100 staff this school and has a strong research programme with 18 undergraduate and postgraduate programmes. In 2011 Professor McCarron was elected Dean of the Faculty of Health Sciences, with responsibility for the School of Nursing and Midwifery, School of Pharmacy and Pharmaceutical Sciences, School of Dental Sciences, Medicine, with a student body in excess of 4,000 and a staff of 650. She is a member of the Senior Executive Management team of the University. A leader in multidisciplinary health sciences, Professor McCarron is a committed ageing research leader at Trinity College and an international expert in the fields of intellectual disability, ageing, dementia, and palliative care. Professor McCarron is the founder and Principal Investigator for the first ever Longitudinal Comparative Study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or internationally. This study is a supplement to The Irish Longitudinal Study on Ageing (TILDA). With its nationally representative sample, huge support from people with ID, their families and providers, and opportunities for comparisons with the general population, IDS-TILDA increases understanding how lives and chronic conditions change over time and provides insights on key issues at end of life. Professor McCarron's innovative and inclusive approaches are internationally recognized as an exemplar for ensuring meaningful involvement of persons with disability in the research process. With extensive experience in working in the area of dementia in people with Down syndrome Professor McCarron has led large longitudinal cohort studies spanning over 25 years. Her special interest is on the early detection and presentation of dementia, and in the development of humane approaches to care and support. Her award winning approaches on environmental design and technology innovations are sustaining and improving quality of life for people across the continuum of dementia. She has been a key advisor of ageing and policy issues to various governmental and other groups at a National and International level. The emerging IDS-TILDA data is already informing needed policy responses to develop human and appropriate services for this increasingly at risk group. She has been successful in obtaining over €10,000,000 in research funding, as PI or collaborator, and holds/has held grants from a variety of National International sources such as the Department of Health, Health Research Board, National Disability Authority, All Ireland Institute of Hospice and Palliative Care, Atlantic Philanthropies and Horizon 2020. Professor McCarron is an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), she plays a critical leadership role in EngAGE, the Trinity College Dublin consortium of over 140 multi-disciplinary researchers on ageing issues. In 2010 in conjunction with Professor Heleen Evenhuis, Professor McCarron led the Development of a PhD Exchange Programme between the School of Nursing and Midwifery at Trinity College and the Department of Intellectual Disability Medicine, Erasmus Medical Centre, Rotterdam, Netherlands. She holds a research Professorship at the Centre for Excellence in Ageing & Community Wellness at the University at Albany NY. Her work is widely published.
  Aged care nursing   Ageing & Intellectual Disability - Changing Service Needs   Ageing & Intellectual Disability Issues   Ageing, Health and Intellectual Disability   Dementia in people with Down's syndrome   Mental health nursing   Palliative Care and Dementia   Palliative care nursing   People with Down Syndrome & Alzheimer's Disease
 HRB Impact Award
 National Intellectual Disability Dementia Diagnostic Centre
 Better Bones, Better Health: Developing a risk assessment tool for the prediction of osteoporosis and osteopenia among adults with an intellectual disability
 Wave IV An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
 Working with the Research Community: Training & Toolkit for Patients and Members of the Public

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Details Date
Peamount Hospital (Appointed to board December 2018) December 2018 - Present
Member of the National Steering Committee for the National Dementia Office, HSE 2017 - Present
Advising the National Federation of Voluntary Bodies Working Group on Health Outcomes for Older Adults with Intellectual Disabilities 2017 - Present
Appointed by the Minister for Health to the Steering Committee of the National Trauma Strategy 2015
Dental Hospital (The Minister for Health appointed the Board in June 2015) Dental Board Meeting Performance and Succession Committee Meeting (Chair) June 2015 - Present
Board member of DOCTRID 2015 - Present
Language Skill Reading Skill Writing Skill Speaking
English Fluent Fluent Fluent
Details Date From Date To
Member, Trisomy 21 Research Society 2019 Present
Member, National Steering Committee on Open Science, Health Research Board 2018 Present
Member and founder, National Federation Working Group on Health Outcomes for Older People with Intellectual Disability 2018 Present
Member, Steering Committee, National Dementia Office 2016 Present
Member, Trinity EngAGE, Trinity College Dublin 2010 Present
Member, HSE National Steering Group on Dementia, National Federation of Voluntary Bodies 2008 Present
Member, TILDA Steering Committee, Trinity College Dublin 2006 Present
Member, European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities 2005 Present
Member, International Down Syndrome Special Interest Group 2004 Present
Member, Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group 2000 Present
Advisor, Ageing related issues in persons with Intellectual Disability, Inclusion Ireland 2000 Present
Member, International Association for the Scientific Study of Intellectual Disability (IASSID) 2000 Present
Member, National Steering Committee, National Dementia Office, Health Service Executive (HSE) 2017 2018
Member, National Working Group on Extending Palliative Care to Persons with Advanced Dementia 2008
Member, Research Committee, National Federation of Voluntary Bodies 2008
External Member, Residential Care Standards for Older People by the Health Information Quality Authority (HIQA), St. Patrick's Hospital Cashel 2008
Member, Professional Advisory Group, Alzheimer's Europe Conference 2005 2004 2005
Member, Strategic Planning Group on Older People with Disabilities 2000 2004
Chair, 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia, Volos, Greece 2003 2003
Guest Reviewer - Irish Journal of Psychological Medicine, Journal of Intellectual Disability Research & American Journal of Mental Retardation
Changes across the lifespan, in, editor(s)Barr, O & Gates, B , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Bradley, A., Crickmore, D., Dearing, M., Marsh, L., McCallion, P., McCarron, M., & Read, S.], Book Chapter, PUBLISHED
Mental health and emotional wellbeing. in, editor(s)Barr, O & Gates, B , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Chaplin, E., Francis, R., McCallion, P., McCarron, M., Read, S., Taggart, L., & Ward, G.], Book Chapter, PUBLISHED
Accessing general health services. in, editor(s)Barr, O & Gates, B. , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Barr, O., Bell, T., Bromley, J., Chaplin, E., Francis, R., Marsh, L., McCallion, P., McCarron, M., O'Neill, E., Read, S., Russ, L., Scott, J., & Sowney, M.], Book Chapter, PUBLISHED
Epidemiological issues. in, editor(s)V.P. Prasher, & M.P. Janicki , Physical Health of Adults with Intellectual Disabilities, London: Wiley, 2019, pp9 - 26, [McCallion, P., Ferretti, L., Beange, H., & McCarron, M.], Book Chapter, PUBLISHED
Important Physical Health Issues in, editor(s)V.P. Prasher, & M.P. Janicki , Physical Health of Adults with Intellectual Disabilities, London: Wiley, 2019, pp27 - 52, [Burke, E., O'Dwyer, M., McGlinchey, E., Foran, S., MacGiolla Phadraig, C., Carroll, R., McCallion, P & McCarron M.], Book Chapter, PUBLISHED
O'Dwyer M, Finnerty S, Henman M, Carroll R, McCallion P, McCarron M. , Prevalence and treatment of dementia in older adults with Intellectual Disability (ID) in Ireland, Journal of Intellectual Disability Research, IASSIDD World Congress, Glasgow, August 2019, 63, (7), 2019, Conference Paper, PUBLISHED  DOI
Bond L, Carroll R, Mulryan N, O'Dwyer M, O'Connell J, Monaghan R, Sheerin F, McCallion P, McCarron M. , The association of life events and mental ill health in older adults with intellectual disability: results of the wave 3 intellectual disability supplement to the Irish longitudinal study on ageing (IDS ]TILDA), IASSIDD World Congress, Glasgow, August 2019, 63, (7), 2019, Conference Paper, PUBLISHED  DOI
Burke, EA., Carroll, R., Walsh, JB., McCallion, P. and McCarron, M., Bone health, grip strength and older men with intellectual disability , THE WORLD CONGRESS OF THE INTERNATIONAL ASSOCIATION FOR THE SCIENTIFIC STUDY OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, Glasgow , August 2019, 2019, Conference Paper, ACCEPTED  DOI
Mac Giolla, Phadraig C., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Non-restrictive support strategies for adults with intellectual disabilities: A focus group study exploring dentists decision making and communication., Journal of Intellectual Disability Research, 2019, Journal Article, PUBLISHED
Bond, L., Carroll, R., Mulryan, N., O'Dwyer, M., O'Connell, J., Monaghan, R., Sheerin, F., McCallion, P., McCarron, M., The association of life events and mental ill health in older adults with intellectual disability: results of the wave 3 Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing, Journal of Intellectual Disability Research, 63, (5), 2019, p454 - 465, Journal Article, PUBLISHED  DOI
  

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McCarron, M., Intellectual Disabilities: The Opportunities for Global Brain Health, GBHI Network Symposium, Dublin, 8th May, 2019, GBHI, Invited Talk, PRESENTED
McCarron, M., Positive Ageing Indicators for People with an Intellectual Disability., Launch of the Healthy and Positive Ageing Initiative (HaPAI) Positive Ageing Indicators Report 2019, Department of Health, Dublin 2, 29th May, 2019, Department of Health, Invited Talk, PUBLISHED
McCarron, M., Living with Dementia in Rural Ireland, 4TH Annual Conference - Disability and Human Rights with Dementia, Kings House, Boyle, Co.Roscommon, 27th May, 2019, Invited Talk, PRESENTED
McCarron, M., Understanding key issues in ageing for people with an intellectual disability: Ten years of data from IDS-TILDA, Peamount Hospital, 20th August, 2019, Invited Talk, PUBLISHED
McCarron, M., Understanding the Determinants of Health and Well-being for People Ageing with an Intellectual Disability: Key insights from Longitudinal Studies, DOCTRID IV Conference, National University of Ireland, Galway, 19th -20th September, 2019, Invited Talk, PUBLISHED
McCarron, M., Ageing and Dementia in people with ID: Challenges and Opportunities in Care , Inaugural meeting of the MLM CHO Dementia Strategy Steering Group, Mullingar Park Hotel, Mullingar, Co. Westmeath, 24th September, 2019, Invited Talk, PUBLISHED
McCarron, M, Dementia: transforming the journey - prevention, treatment and quality of life., Hilton Hotel, Templepatrick, Co. Antrim, 17th May, 2018, Invited Talk, PRESENTED
Bowman, S., McCarron, M, Advancing Public & Patient Involvement in Health Research, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018, Invited Talk, PRESENTED
Bowman, S., McCarron, M, HRB-IRC, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018, Invited Talk, PRESENTED
McCarron, M, Round Table 1: What can mortality data tell us about health inequalities at end of life? "Older adults who have died across the first 10 years of IDS-TILDA", 5th IASSIDD Europe Congress 2018, Athens Greece, 18 - 20 July, 2018, Invited Talk, SUBMITTED

  

Page 1 of 10
Award Date
Winner, Inaugural Impact Award, Health Research Board 2019
Chair, Ageing and Intellectual Disability 2014
Trinity Fellow April 2011
Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999
Nurse of the Year 1993
An international expert in the field of ageing and intellectual disability, Professor Mary McCarron is the founder and Principal Investigator of the first longitudinal study on ageing in people with an intellectual disability (IDS-TILDA) to be conducted within the EU and the only study, to date, with the potential to compare the ageing process in people with intellectual disability with the general population (TILDA). The recipient of the inaugural Health Research Board 2019 Impact Award, Prof McCarron's research excellence and translational activities have been recognised as exemplary. Her sustained efforts in including people with intellectual disabilities in all aspects of research was instrumental in securing an institutional Public, Patient Involvement award from the Health Research Board and Irish Research Council for Trinity College. Leading a research team focused upon ageing, intellectual disability, dementia, end of life and palliative care, Professor McCarron's work is at the forefront of addressing health and care inequities. Funded by the Health Research Board, Irish Hospice Foundation, The Atlantic Philanthropies, Department of Health, Irish Research Council, National Disability Authority, EIT Health and others, Professor McCarron's areas of focus are: Longitudinal epidemiological studies tracking the key determinants of health and wellbeing of adults with an intellectual Disability as they age. . Develop interventions models targeted at preventing secondary disability and improving quality of life and longevity for people with ID. . Longitudinal studies tracking over 20+ years the incidence, prevalence and risk factors associated with dementia in people with Down syndrome. . Working with relevant agencies to establish the first National Memory Clinic for people with ID with satellite services throughout the country with a focus on building capacity for assessment of symptoms of dementia and the standardization of assessment and diagnostic protocols. . Using a concerted and collaborative approach develop the infrastructure and networks required to establish and run large scale primary and secondary clinical trials. Work with international collaborators and the Global Brain Health Institute (GBHI) to develop and validate clinical trials outcome measures, and to develop pre dementia disease models by accumulating clinical and biomarker data with a focus on disease prevention and treatment in people with Down syndrome. . Work with people with ID and relevant agencies and policy makers to develop post diagnostic supports for people with ID and dementia and their caregivers and assess cost and quality of life issues in dementia care and end of life care. . Extending palliative care to persons with advanced and terminal dementia and other non-malignancies . Award-winning approaches to environmental design for those ageing with dementia;